
By James N. Parker, Icon Health Publications
This sourcebook has been created for fogeys who've determined to make schooling and Internet-based examine an essential component of the remedy strategy. even though it provides info worthwhile to medical professionals, caregivers and different healthiness execs, it additionally tells mom and dad the place and the way to seem for info protecting nearly all themes concerning microphthalmia, from the necessities to the main complicated components of study. The identify of this publication comprises the notice reliable. This displays the truth that the sourcebook attracts from public, educational, executive, and peer-reviewed study. chosen readings from numerous corporations are reproduced to offer you a number of the most up-to-date reputable info to be had so far on microphthalmia. Following an introductory bankruptcy, the sourcebook is prepared into 3 components. half I: THE necessities; bankruptcy 1. The necessities on Microphthalmia: guidance; bankruptcy 2. looking information; bankruptcy three. medical Trials and Microphthalmia; half II: extra assets AND complicated fabric; bankruptcy four. stories on Microphthalmia; bankruptcy five. Periodicals and information on Microphthalmia; bankruptcy 6. health care provider directions and Databases; bankruptcy 7. Dissertations on Microphthalmia; half III. APPENDICES; Appendix A. getting to know Your kid's medicinal drugs; Appendix B. studying replacement medication; Appendix C. discovering food; Appendix D. discovering clinical Libraries; Appendix E. Your kid's Rights and assurance; on-line GLOSSARIES; MICROPHTHALMIA word list; INDEX. similar themes comprise: microphthalmos, small eye syndrome.
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Extra resources for The Official Parent's Sourcebook on Microphthalmia
Sample text
Simply type in “microphthalmia” (or a synonym) or the name of a topic, and the site will list information contained in the database on all relevant organizations. Seeking Guidance 25 The Combined Health Information Database Another comprehensive source of information on healthcare associations is the Combined Health Information Database. Using the “Detailed Search” option, you will need to limit your search to “Organizations” and “microphthalmia”. html. ” By making these selections and typing in “microphthalmia” (or synonyms) into the “For these words:” box, you will only receive results on organizations dealing with microphthalmia.
How Is a Clinical Trial Conducted? Various organizations support clinical trials at medical centers, hospitals, universities, and doctors' offices across the United States. The “principal investigator” is the researcher in charge of the study at each facility participating in the clinical trial. Most clinical trial researchers are medical doctors, academic researchers, and specialists. The “clinic coordinator” knows all about how the study works and makes all the arrangements for your child’s visits.
In addition, the Association promotes the development of state and local organizations by and for parents of visually impaired children and fosters communication and coordination of services among federal, state, and local agencies. The Association offers a variety of educational and support materials including its database; quarterly newsletter 'Awareness'; books; handbooks and guides for parents and teachers; a listing of resources for teachers; brochures; and other publications. org/ Background: The Arc is the largest organization in the United States that is solely devoted to improving the lives of all children and adults with mental retardation.